The Zarit Burden Inventory (ZBI) is a self-report instrument that measures the level of burden that principal caregivers experience. Originally developed for caregivers of persons with dementia, ZBI is now used with various types of caregivers, including parents of children with health, behavioral, and developmental problems. The current full version, ZBI-22, has 22 items, each using a 5-point Likert-type scale. Shorter versions exist; see Yu et al. (2019) in the psychometric references below.
Access and Use
Al-Balushi, N., Al-Alawi, M., Al Shekaili, M., Al-Balushi, M., Mirza, H., Al-Huseini, S., ... & Al-Adawi, S. (2019). Predictors of burden of care among caregivers of drug-naive children and adolescents with ADHD: A cross-sectional correlative study from Muscat, Oman. Journal of Attention Disorders, 23(5), 517-526. https://doi.org/10.1177/1087054718808381
Çınar, S., Boztepe, H., Ay, A., Yılmaz, P., Güllü, H., Karadavut, B., ... & Akyüz, C. (2021). Predictors of parenting stress in parents of children with cancer. European Journal of Oncology Nursing, 54, 102022. https://doi.org/10.1016/j.ejon.2021.102022
Prieto, V. (2022). Caregiver Burden, Caregiving Satisfaction, and Health-Related Quality of Life Among Caregivers of Children with Medical Complexity. Pediatric Nursing, 48(3), 111-121.
Anthony-Bergstone, C. R., Zarit, S. H., & Gatz, M. (1988). Symptoms of psychological distress among caregivers of dementia patients. Psychology and Aging, 3(3), 245. https://doi.org/10.1037/0882-79220.127.116.11
Zarit, S., Orr, N. K., & Zarit, J. M. (1985). The hidden victims of Alzheimer's disease: Families under stress. New York University Press.
Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. The Gerontologist, 20(6), 649-655. https://doi.org/10.1093/geront/20.6.649
Zarit, S. H., & Zarit, J. M. (1990). The memory and behavior problems checklist and the burden interview. Gerontology Center, The Pennsylvania State University.
Yu, J., Yap, P., & Liew, T. M. (2019). The optimal short version of the Zarit Burden Interview for dementia caregivers: diagnostic utility and externally validated cutoffs. Aging & Mental Health, 23(6), 706-710. https://doi.org/10.1080/13607863.2018.1450841